Search Results
Stephanie
My journey with blood cancer began long before my diagnosis. In 2006, my world was shattered when my mom, just 52 years old, was diagnosed with acute myeloid leukemia (AML). She was quickly isolated in a specialized hospital, enduring grueling rounds of chemotherapy. I was about to start nursing school and desperately tried to educate myself on her illness, knowing deep down that the prognosis was grim. They mentioned a bone marrow transplant, but she never made it that far. A fungal pneumonia took her from us in December 2006.
Managing Insurance and Expenses During Illness
It's important to resolve financial issues before they become a source of increased stress or limit your access to needed treatments, prescription medications or support services. Therefore, discuss payment options with members of your healthcare team or the treatment centers' patient financial services department. Patients and providers can work together to devise ways to reduce costs without compromising treatment. Ask your providers about:
Treatment
It's important that your doctor is experienced in treating patients with acute myeloid leukemia (AML) or has access to an AML specialist.
Types of AML TreatmentDoctors use several types of treatment for adults with AML, some at different stages. Click on the links below to read more about each type of treatment.
Stem Cell Transplantation
For some patients who are in remission and can tolerate intensive chemotherapy, the doctor may recommend stem cell transplantation during the consolidation phase of chemotherapy.
Supportive Care
Supportive care is given to improve the quality of life for patients with MF. The goal of supportive care is to prevent or treat the symptoms of MF.
AnemiaAnemia is observed in more than 50 percent of patients with MF at the time of diagnosis. Before considering treatment options, it is important for doctors to rule out and treat the most common causes of anemia such as bleeding, iron deficiency, vitamin B12 deficiency and folic acid deficiency.
Treatment
Getting a Second Opinion
Leukemia, lymphoma, myeloma and myelodysplastic syndromes are each different types of cancers. What's more, each disease has subtypes. This means that the signs of the disease, how it's diagnosed and treated and the expected outcomes vary. That's why it's essential to have the right diagnosis before you begin or continue with treatment.
Managing Sexual Side Effects
An important part of managing side effects that impact your sexual health is to determine what factors may be causing or contributing to the changes you are experiencing, so that you can address them. Sexual side effects during cancer treatment can include:
Diagnosis
An accurate diagnosis of the type of leukemia is important. The exact diagnosis helps the doctor to
- Estimate how the disease will progress
- Determine the appropriate treatment
After your doctor or clinician takes your blood, he or she sends it to a lab for a complete blood count (CBC), which shows the number of red cells, white cells and platelets in your blood.
Imaging Tests
Imaging or radiology tests pass different forms of energy (x-rays, sound waves, radioactive particles or magnetic fields) through your body, creating pictures of the chest, abdomen, head, neck and other parts of the body.
Treatment
On average, individuals with essential thrombocythemia (ET) have a normal life expectancy if they are properly monitored and treated. It's important that your doctor is experienced in treating myeloproliferative neoplasms (MPNs) or works in consultation with a hematologist oncologist who has experience treating MPN patients.
Choosing a Blood Cancer Specialist
Hematologists specialize in internal medicine with a subspecialty in hematology, the study of diseases of the blood. A “hematologist-oncologist” is a doctor who specializes in treating people with blood cancers. Pediatric hematologist-oncologists treat infants, children, and adolescents with blood cancers. Blood cancers are uncommon diseases, so it can be to your advantage to be treated by a doctor specially trained to focus on treating patients with blood cancers.
Children and End of Life
Children facing end-of-life have specific needs and concerns to consider. It's important to approach them in a spirit of honesty. However, honesty doesn't mean overwhelming them with information and details that can be frightening. Honesty means honesty of feeling. Information needs to be screened and made appropriate for their needs.
Graysen
Graysen was born in March 2017. She was born the day before my birthday and we often say that she was the greatest birthday present ever. She was such an easy-going baby - happy, curious, and sweet with a magnetic personality. She was seemingly healthy, happy and 21 months old when we shockingly learned she had leukemia in November 2018. It was a diagnosis we never saw coming and one we were forced to simultaneously digest, navigate and hit head on.
Lori
Lori’s journey to becoming a Leukemia & Lymphoma Society (LLS) volunteer began back in 2002 through her own experience with being diagnosed with Myelofibrosis. Lori had just embarked on a new job as a real estate agent to a new home builder when she began to feel extremely tired and have pain in her hands. She chalked up her sickness to a case of the flu; however, after deciding to go to her doctor, he recommended some blood work which came back showing high white counts. Her doctor referred her to an Oncologist who did a bone marrow biopsy. The results showed she had Myelofibrosis.
Krista
Prior to my diagnosis, I was a much-loved daughter to my parents, a dedicated dog mama to my Golden Retriever, a loyal friend, and an enthusiastic high school history teacher. After my diagnosis and seven-year battle with refractory Hodgkin lymphoma (HL), I was still all of those things and somehow so much more.
Isabelle
I was diagnosed with acute lymphoblastic leukemia (ALL) on December 4, 2003, at the age of five. As a young child, I was very energetic and loved to do anything outdoors and active, and I especially loved a good competition with my older brother Harrison. My parents began noticing that something was off when I started complaining about not being able to walk up the big hills in San Francisco where we lived. This was very uncharacteristic of me as I loved to race my brother to the top.
Rick
Rick Ostroff and his family have a legacy of philanthropy with a heartfelt connection to a disease he never had. During the first three years of his life, he spent time on the leukemia floor of Children’s Hospital in Boston but eventually was found to have the critical illness of gamma globulin anemia rather than then-fatal leukemia.
Julie
March 22, 2020- 7 years since acute myeloid leukemia (AML) diagnosis, CURED!!! I am so blessed to be alive to celebrate my 7th year since diagnosis of AML! Who celebrates being diagnosed with AML or any cancer for that matter? But let’s be honest, in the cancer lottery, AML, is not one of the preferred. At least if you cling to cancer stats which is something I highly discourage. The first problem with AML stats specifically-the mean DX age of 68ish.
Savanna
My name is Savanna, I’m 24 years old, and I am a two-time Hodgkin lymphoma (HL) survivor! I was diagnosed in 2017 when I was 18 during my freshman year of college. I had been severely sick for a year and a half with symptoms ranging from nausea, vomiting, unexplained weight loss, lack of appetite to a distended abdomen, debilitating migraines, swollen lymph nodes all over my body, extreme fatigue, and drenching night sweats. I had test after test done, saw doctor after doctor, and after months of being my own advocate, I had finally received a diagnosis.
Immunotherapy
Immunotherapy, also called biological therapy, utilizes your own immune system to fight cancer. It generally results in fewer short-term side effects than chemotherapy does.
Immunotherapies being used or studied to treat blood cancer include:
Treatment Outcomes
With the current advances in treatment and supportive care, survival rates for myeloma patients have improved significantly in the last decades. It is not unusual for myeloma patients to live for 10 years or longer after diagnosis. Outcomes are influenced by a series of patient-specific factors, including disease stage, chromosome abnormalities, age and presence of other medical problems. Patients should discuss their own potential outcomes with their doctors.
Click here to access myeloma survival statistics.
Be Your Child’s Advocate
Parents may need to educate other family members, friends, school personnel and healthcare providers about long-term and late effects. Here are some steps parents can take:
Myeloma Overview
Myeloma Link Connecting African American Communities to Information, Expert Care, and SupportAs black Americans are at twice the risk for myeloma as whites, The Leukemia & Lymphoma Society has created Myeloma Link to increase access to education and treatment for myeloma in African American communities.