Skip to main content

Myeloproliferative Neoplasms

Please note that these resources are regularly reviewed to ensure that links still work correctly and that the resources listed continue to be helpful to our visitors. If you find that a link isn't working or information is incorrect, please email infocenter@lls.org.  If you would like for us to consider adding your organization to this resource, please complete and submit this form.

HealthTree Foundation

Contact: 800-709-1113 or email info@healthtree.org
Population Served:

Patients, caregivers, and healthcare professionals

MPN Advocacy and Education International

Contact: 517-899-6889
Population Served:

Patients with myeloproliferative neoplasms (Essential Thrombocythemia, Idiopathic Myelofibrosis, Polycythemia Vera), caregivers, professionals worldwide

MPN Cancer Connection

Contact: Website
Population Served:

Patients diagnosed with Myeloproliferative Neoplasms (MPNs), caregivers, professionals

MPN Education Foundation

Contact: Website
Population Served:

Patients, caregivers, health professionals worldwide

MPN Research Foundation

Contact: 773-977-7216
Population Served:

People diagnosed with a myeloproliferative neoplasm (MPN) worldwide

National Organization for Rare Disorders, Inc. (NORD)

Contact: 800-999-6673
Population Served:

Patients in the U.S. with rare diseases

OncoLink

Contact: Website
Population Served:

Patients, caregivers, families, and healthcare professionals impacted by cancer

Patient Power

Contact: Website
Population Served:

Patients and caregivers

PV Reporter

Contact: Website only
Population Served:

Patients with MPNs, caregivers and healthcare professionals worldwide