Search Results
Lisa
It's not easy being bald, a bald physician, and a bald wife. This is my third dance with Hodgkin's Lymphoma (HL). I first met HL in college, as many young girls meet their first pivotal relationship. Sadly for me, I attended an all woman's college, so my pivotal 'boyfriend' came in the form of a first cancer diagnosis.
Justin
In March 2012, when Justin was in the sixth grade, he started to rapidly lose weight, was experiencing extreme exhaustion and night sweats. After multiple visits to the doctor but no answers, his parents finally took him to the hospital for more intensive testing, including a bone marrow biopsy. One day later they received the shocking diagnosis: acute lymphoblastic leukemia.
Jesus E.
My grandpa was diagnosed with non-Hodgkins lymphoma (NHL) in 2007. It turned our world upside-down. You always hear these stories of families going through the motions of this disease but never personalize it until it actually happens to someone you love.
Amanda
In October 2018, I was diagnosed with stage 2 Hodgkin lymphoma, oh and I was 5 months pregnant at the time. I had been having recurring bronchitis and sinus infections for several months and I self-diagnosed myself with chronic bronchitis or sinusitis. I went into urgent care in October with severe flu symptoms and a persistent cough that would not go away. I tested negative for influenza and the doctors couldn't find any other type of infection to explain my symptoms. They thought maybe I had pneumonia and asked if I wanted to do an X-ray, given I was pregnant.
Alyssa
From December 2021-January 2022, I had just come off orientation for my new job as a registered nurse. I was working the night shift and just thought I was experiencing the "usual" night shift symptoms. I was ALWAYS tired, had terrible back pain, and had such a shift in my appetite. I went for a physical just to be sure. My bloodwork was normal (slightly elevated WBC but told it could have been from stress at work), and my doctor sent me for physical therapy for my back pain. After going to physical therapy for weeks with no improvement, I noticed a lump on my neck.
Kate
On May 17, 2018, our family was thrown into the world of blood cancer. Our family's patriarch, our bonus dad, and our beloved "Candy Boy," as he was affectionately nicknamed by his youngest daughter, found out that he was in the aggressive stages of acute myeloid leukemia (AML).
Timothy
I am an awardee of The Leukemia & Lymphoma Society’s (LLS) Scholarship for Blood Cancer Survivors. I currently hold an associate’s degree in science and am pursuing my bachelor's degree in biology at California State University, San Bernardino, (CSUSB). I am very grateful to be granted this scholarship to help pay for my tuition. In fact, this is the first scholarship I have ever been awarded during my education. These funds are a big stress reliever as it has provided me with the ability to avoid taking out a loan for school and given me peace of mind.
Megan
Megan is my daughter. She was diagnosed in April 2020 with stage 2 Hodgkin lymphoma (HL) at the age of 16. At the time, Megan was finishing up her sophomore year of high school. Due to the pandemic, school was virtual, and even though she had a month and a half to go, she finished with straight A’s while receiving chemo. She would go on to have four cycles that included 16 rounds of chemo. Her cancer was still not completely gone, so a 21-day regimen of radiation was administered.
Landon
My cancer journey began on June 24, 2018. A month before that day, I'd experienced chest pains, night sweats, and shortness of breath. After scheduling a doctor's appointment, my primary physician determined that it was merely an upper respiratory infection. For a week, I took the medicine prescribed by my doctor, hoping that I would soon feel well again. With little to no signs of improvement, I scheduled another appointment for Monday, June 25th. We didn't make it to that appointment, because on June 24th, I lost oxygen and passed out.
Nick
My former student, Nick K. was a previous honoree of The Leukemia & Lymphoma Society (LLS). Diagnosed with a PNET brain tumor at age 4 and enduring two bouts of acute myeloid leukemia (AML) as a result in the years to follow, Nick was obviously a fighter!
Laura
I became aware of The Leukemia and Lymphoma Society (LLS) after I was diagnosed with acute lymphocytic leukemia (ALL). A social worker at the hospital where I was being treated gave my information to the LLS Patient Services Manager, and she called me. Then she gave me the contact information for a patient who had young children like mine and was two weeks ahead of me in the process, and we spoke with each other.
Miah
I am 28 years old and was diagnosed with stage 4 non-Hodgkin lymphoma (NHL) when I was 27. I am a mother of two (a 5-year-old boy and a 7-year-old daughter). I am a licensed esthetician in Chicago and have run my own beauty business for six years.
Donna
I was shockingly diagnosed with a monoclonal spike in November 2019 (six months after the unexpected death of my mom). Treatment was started in June 2020. I went to Mt. Sinai NYC where they have a team that just deals with multiple myeloma (MM). I am grateful that a couple of people recommended I go there. They treated me with four drugs, one of which wasn’t available at my local oncologist. The regimen was Velcade, Revlimid®, daratumumab, and dexamethasone. I had this induction therapy until my stem cell transplant in March 2021.
Refractory and Relapsed Childhood ALL
Most children with ALL are cured with standard chemotherapy treatments. But about 15 percent of young patients have ALL that returns after remission. This is referred to as a “relapse” of the disease (or “relapsed ALL”). Some children are unable to achieve a remission because their cancer does not respond to treatment. In these cases, the disease is referred to as “refractory” (or “refractory ALL”).
Disease Complications
As myelofibrosis (MF) progresses, complications may arise:
Hair Loss
Drugs that damage or destroy cancer cells also affect normal cells. Rapidly dividing cells, such as hair follicle cells, are the most affected. This is why hair loss (alopecia) is a common side effect of chemotherapy. Hair loss can range from thinning to baldness. It may be sudden or slow. You may also lose hair from other areas of your body such as eyelashes and eyebrows.
Hair usually grows back after treatment ends. The thickness, texture or color of hair may be different when it grows back.
Resources for Survivors
Survivorship WorkbookUse this Survivorship Workbook to collect all the important information you need throughout diagnosis, treatment, follow-up care and long-term management of a blood cancer.
Dental Health
Dental care is an important part of overall cancer care. Good nutrition also plays a big role in dental health. Problems with the teeth, gums or mouth can interfere with eating well. Poor nutrition can lead to dental problems.
Visit the dentist at least four weeks before treatment begins if possible, and
Chemotherapy
ChemotherapyChemotherapy is the use of potent drugs or chemicals, often in combinations or intervals, to kill or damage cancer cells in the body. Chemotherapy drugs are often called anticancer agents. The drugs must be toxic enough to kill leukemic cells, which is why chemotherapy can be hard on your body; the drugs' toxicity can harm your healthy cells as well. However, successful chemotherapy depends on the fact that cancerous cells are more sensitive to the chemicals in the drug than normal cells are.
Mental Health
The term “mental health” includes your emotional and psychological well-being. Your mental health guides how you handle stress, manage relationships and make decisions. Mental health, like physical health, is important to your overall well-being.
Emotions like sadness, anger or stress are normal and healthy responses to difficult life events, such as a cancer diagnosis. However, sometimes persistent feelings of sadness, stress or anxiety can be caused by a mental health disorder. Don't ignore any of these feelings. Talk to your healthcare team about how you are feeling.
Zoie
My mom thought it was the flu, maybe mono. After I spent five days lying in bed, she took me to an Urgent Care Clinic. I knew it was something far more serious after they called an ambulance. My mom wouldn’t believe the Urgent Care doctor when he told her he suspected it was cancer. Unfortunately, he was right. I was 11 when I was diagnosed with acute lymphoblastic leukemia (ALL).
Cindy
Our church choir had put on a big Easter program in 2002, lots of practices and multiple performances. After the fact, several, including me, came down with an upper respiratory infection. All my friends got better, but I didn’t. Then I started having low energy to the point that I couldn’t do my daily workouts. Next came the appearance of big, ugly bruises on my legs. At that point, I thought I was anemic. When I called to get a doctor’s appointment, the only opening was with his nurse practitioner.
Avery
I am writing as a parent of a cancer survivor. My daughter, Avery Smith, who is now 8 years old, was diagnosed at age 3½ with leukemia. In 2016, our then 3-year-old daughter Avery was complaining of muscle aches, backaches, and for a solid week was running a pretty high fever. We took her to the doctor, and after a few visits, they weren’t really sure what was going on. After some bloodwork, our pediatrician called us and said Avery had some very concerning numbers.