Search Results

Nikolas

Hello, my name is Nikolas Davison. I am 14 years old (almost 15 in July) and have battled acute lymphoblastic leukemia (ALL) for the past four years, but I am now done with chemo and getting my port removed soon.

In November 2016, I was misdiagnosed with appendicitis and was taken to the hospital by my father, where they took my blood and ran several tests. This was a painful experience to go through and I was very scared. After more tests, they knew that I had cancer. I was shocked, scared and horrified. I never thought in a million years that I would get cancer.

Sandy

In the summer of 2006 I received a letter in the mail much like what you get around the holidays telling of the adventures over the past year.  My friend had recently moved to Tucson with her family.  She shared pictures of their kids and told about the transition from the Seattle area to Tucson.

Betsy

My dad, my best friend, lost his short 15-day battle with acute myeloid leukemia (AML) on January 23, 2008. Dad was 72, but not just any 72-year-old man. He had so much life in him. He was very active in his community and loved his wife (they were married for 44 years), his daughters (my sister and I), and especially his three grandchildren!  He lived every moment to the fullest and you knew he enjoyed life just by listening to his infectious laugh! He always had a smile on his face, a story to share, and those always needed words of wisdom to share.

Alessandra

At the age of 14 I was diagnosed with stage 4 Hodgkin lymphoma. The doctors only gave me a 25 percent chance to live. I still remember the day I walked into the ER with my mom to get my CT scan done. Post exam, the doctor muttered,“You have cancer, but don’t worry just yet. The test tomorrow will let us know more.” Before I knew it, the next day, I found myself staring at the operating room ceiling, numb to the thought that it was all too real. Hours of surgery later, we found out the cancer had spread through my neck, entire chest and lungs.

Campbell

Hi!  My name is Campbell Brandt.  I am 9 years old and a student at Spring Run Elementary School in Chesterfield County, Virginia.  I love to dance, play softball, ride my scooter, sing karaoke, listen to music and watch the Disney channel.  I like to dance and sing to Katy Perry, Taylor Swift and Carrie Underwood.  I am a pretty typical 9-year-old girl, except that I have fought cancer.

Stanley

Stanley was only 13 months old when he was diagnosed. He was a happy and healthy baby boy.  Showing no previous symptoms or signs of sickness, Stanley was rushed to the ER one late Wednesday night because his parents, Joe and Krissi, thought he might have swallowed something.  That was December 16, 2015. By 8p.m.

Heather

The world works in mysterious ways, it truly does! When I first volunteered with The Leukemia & Lymphoma Society's (LLS) Team In Training (TNT) program in 2015, I never in a million years thought I would be fundraising in honor of my husband Dave. I started out fundraising for my step-grandmother Margaret and his grandmother Pearl. Eventually, the list of people I ran and fundraised in honor or memory of grew to way over 20! All that time it turns out I was fundraising for Dave, too, we just didn't know it yet!

Alesia

In November 2021, I experienced my first panic attack while at work. I went to the urgent care clinic, and they tested me and said I was good and might be experiencing anxiety. At that time, being a teacher in my school was hard and overwhelming, and I started taking anxiety medication. Later on in the school year, I continued to experience COVID-like symptoms but was always negative. I did eventually get COVID, but I was still healthy on paper. While all of this was going on, I was also encountering fatigue that I couldn't explain and blamed it on my job.

Ed

Like many who get diagnosed with multiple myeloma (MM), it comes out of nowhere. For me, it was mysterious aches and pains that crept up quickly. An alert doctor ordered tests, and eventually, MGUS, the precursor of MM, was first diagnosed. Within a month, MM was confirmed. MM is a blood/bone cancer that can affect the entire body.

For the next six months, I was involved in many tests, along with drug treatments including chemo. I had a stem cell transplant and have generally had a complete response.

David

We all have some absolutely remarkable story to tell in one way or another. The vital task we all have is to appreciate it, embrace it, and articulate it in a way somebody will relate to.

Tatijane

On February 19, 2021, I was diagnosed with acute lymphoblastic leukemia (ALL), both B and T cells, and given six to eight weeks to live. I was 24 years old. I was diagnosed alone in the ER because of COVID-19 protocols and unable to see my family and friends in person for a week or two because of testing, port placements, and biopsies. It was like an earthquake that shook up my life as well as all my loved ones’ lives, and all I wanted was to hug my mom.

Phil

My sweet and wild 3-year-old son, Phil, was diagnosed with B-cell acute lymphoblastic leukemia (B-ALL) in the midst of the holidays in 2019 on December 27. Phil began treatment right away, following a 2½-year treatment protocol for his leukemia type and risk level. With every hospital visit, chemotherapy infusion, medication to take, procedures in the OR, or “job” he was told to do, Phil smiled, he laughed, and he cooperated (with a little encouragement and bribery of course!). There really was something so special about him.

Riley

On March 28, 2018, my husband brought Riley, my sweet, spunky six-year-old, to the emergency room for unbearable leg and hip pain, so unbearable she could no longer walk. I had a baby at home who wouldn’t take a bottle, so I had to let Tim, her dad, take her in without me. We were expecting to hear that she had a bone fracture or maybe even that something was broken.

We were not prepared to hear that she had cancer.

Every single day more than 40 parents will hear those exact same words, “Your child has cancer.”

Katie

Only a couple weeks into my first year of my graduate program, I was diagnosed with acute myeloid leukemia (AML) with FLT3 mutation. I was only 21 years old and my entire world got flipped upside down. My whole life changed and I was about 1,000 miles from home.

Jason

I'm Jason, and I am 38 years old. Early last year I was very sick. I had a fever that would not go away for over three months. Every day I broke 103 degrees, and at least six times I hit 106 degrees. I was getting bloodwork after bloodwork done, seeing doctor after doctor when finally, I met my oncologist, and he did a bone marrow biopsy. He called me the next week and told me I had stage 4 Hodgkin lymphoma (HL), and we needed to start tests immediately so we could expedite my chemo treatment.

Treatment Outcomes

Treatment outcomes for people with CLL vary widely, and expected outcomes are influenced by the

• Stage of the disease
• Presence or lack of various factors associated with higher-risk disease
• Overall health of the patient
• Other considerations.

Current research suggests that newer treatment combinations and approaches may improve the length of survival. People with CLL should consult with their doctors to discuss individual potential outcomes. For survival statistics, click here.

Side Effects

Cancer therapy for juvenile myelomonocytic leukemia (JMML) can sometimes produce side effects. For most patients, treatment side effects are temporary and go away once therapy ends. For others, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects.

Before your child undergoes treatment, talk with his or her doctor about potential side effects. Drugs and other therapies can prevent or manage many side effects.

Skin and Nails

Skin-related side effects from cancer treatment include:

• Dry skin
• Redness
• Itchiness
• Skin lesions

Tell your doctor about any changes to your skin. Your doctor can recommend or prescribe appropriate treatment, including topical solutions (creams, lotions or gels) to soothe your skin or relieve itching.

Tell you doctor immediately if you notice:

Long-Term and Late Effects of Treatment

While treatments for ALL have led to increased survival rates, some may cause significant long-term or late effects. Long-term effects of cancer treatment are medical problems that last for months or years after treatment ends. Late effects are medical problems that do not appear until years, or even possibly decades, after treatment ends.

The long-term and late effects of childhood ALL treatment can include:

Treatment

It's important that your doctor is experienced in treating patients with chronic leukemia or works in consultation with a chronic lymphocytic leukemia (CLL) specialist. This type of specialist is called a hematologist oncologist.

Current therapies do not offer patients a cure for CLL, but there are treatments that help manage the disease. Doctors use several types of approaches and treatment for adults with CLL, some at different stages:

Side Effects

Therapy for CLL sometimes produces side effects. Side effects from kinase inhibitor drugs and monoclonal antibody therapy are generally milder than side effects from chemotherapy. 

For most patients, treatment side effects are temporary and go away once therapy ends. For other patients, side effects can be more severe, sometimes requiring hospitalization. Some patients never have side effects. 

Stem Cell Transplantation

For certain patients with CML, allogeneic stem cell transplantation (the infusion of donor stem cells into a patient) is their best treatment option. However, this type of transplant can cause serious or even life-threatening complications and side effects. In addition, it is often not a good option for older patients or for patients who have other health problems.

Treatment

It's important that your doctor is experienced in treating people who have chronic myelomonocytic leukemia (CMML) or works in consultation with a hematologist oncologist who has experience treating CMML patients.

In most cases, CMML can't be cured, but it can be treated. Doctors use several types of treatment for adults with CMML, although there's no one standard drug therapy for the disease:

Follow-Up Care

Those who have been treated for MDS are encouraged to:

Signs and Symptoms

Essential thrombocythemia (ET) is often detected during a routine blood test before an individual has any symptoms.

The signs and symptoms of ET are linked to high platelet counts that cause the development of a thrombus (blood clot). The symptoms include: