Search Results

Amy

It was July 2014, I got up and went for a quick morning jog before work. It’s Iowa, it was hot and humid, but I was unusually winded after that jog. I figured it was due to being humid outside and finished getting ready to go to work (I was a registered nurse at a physician’s clinic doing triage). During the day, I continued to feel a little winded and noticed I had a cramp in my calf. The nurse in me said to ignore it, that I was overreacting, but I decided to call my physician. She directed me to my local ER for fear of a blood clot.

Disease- and Treatment-Related Pain

People with cancer can have pain caused by the cancer itself, its treatment, or both. They may also have pain caused by other health problems that are unrelated to cancer (like arthritis or diabetes).

Increased pain does not mean that the cancer is getting worse, but you should always tell your healthcare team if you have increased pain.

It’s important to remember that no matter what the cause, pain can be treated.

Follow-Up Care

Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.

• Download or order The Leukemia & Lymphoma Society's factsheet Hairy Cell Leukemia 

Follow-Up Care

Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.

• Download or order The Leukemia & Lymphoma Society’s free booklet, Myeloproliferative Neoplasms.

Follow-Up Care

Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.

• Download or order The Leukemia & Lymphoma Society’s free booklet, Myeloproliferative Neoplasms.

Follow-Up Care

Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.

• Download or order The Leukemia & Lymphoma Society’s free booklet, Myeloproliferative Neoplasms.

Laraine

November 21st is Family Volunteer Day.  The Leukemia & Lymphoma Society (LLS) encourages you to volunteer as a family today. Whatever you choose to do, do it together. Some ideas include: take a few minutes to call a friend, neighbor or colleague; cook a meal together and drop it at the doorstep of someone in need; rake a neighbor’s yard or put a book in a neighborhood lending library.

To honor this day, we are sharing the story about a family faced with a cancer diagnosis, who banded together when the future seemed so unclear.

Julian

I was a 10-year-old kid when I was diagnosed with leukemia. I was a happy, energetic kid who loved being outside and was a straight-A student. However, my whole childhood was put on hold indefinitely once I had cancer. Rather than having sleepovers at my friend’s houses, I was sleeping over at the hospital. It was hard to lose my energy, smile, confidence, and hair as treatment took over my life. It was really hard to understand as I was just a kid getting injections, procedures, chemotherapy, and surgery without truly understanding why.

Thomas

My name is Thomas, and I was diagnosed with stage 2 Hodgkin lymphoma (HL) two weeks after my 30th birthday. Nobody wants to hear the words, "You have cancer," and even though my wife had some suspicions due to my recent weight loss and lower energy levels, it still came as a shock to both of us. The news hit hard, especially since all other aspects of my life were going extremely well. My wife and I had just moved to a new state earlier in the year, I received a promotion at work, we had just returned from a business trip out of state, and overall, things seemed to be going our way.

Will

I am a cancer mom. I WAS a cancer mom. My youngest son, Will, was diagnosed with Hodgkin lymphoma (HL) at age 19 in April of 2019. He, his dad, and I were beyond shocked when we heard the news that the swollen lymph nodes that came up out of the blue one March morning were indeed HL. We didn't really know anybody personally that had it. We didn't know what exactly all the words meant at that moment in time, but we knew it wasn't what we had planned for our youngest son.

Rylie

My name is Rylie York, I am 20 years old and I'm currently a sophomore at Baylor University. I'm originally from Round Rock, Texas and I am a patient at Texas Children's Hospital in Houston, Texas. I was diagnosed with stage 4 Hodgkin’s lymphoma at 18 in the middle of my senior year of high school. I have relapsed twice since then and completed my bone marrow transplant this past August and September.

Jimmy

My journey with The Leukemia & Lymphoma Society (LLS) began in the summer of 2020. My 17-year-old, two-sport athlete son Jimmy came to me complaining that he had pulled a muscle in his neck lifting weights for football and baseball. However, after many doctors’ appointments and tests, on June 12, 2020, in the middle of a pandemic, I received a call that his biopsy was indeed cancer, stage 3 advanced Hodgkin lymphoma (HL). I now had to tell my 17-year-old son that his worst fear was now a reality.

Elisa

I was diagnosed with stage IV Hodgkin lymphoma (HL) in April 2022 at 27 years old. After months of debilitating symptoms and a week-long hospital stay, I finally had an answer as to what was going on with my body. I was relieved to have an answer, but "cancer" was the last thing I expected. Ironically, after my diagnosis and first chemotherapy infusion, I felt better than I had in months. I didn't feel like I had cancer; the only reminders were a few enlarged lymph nodes and the mediport protruding from the right side of my chest. 

Caregiving During Treatment

During and after cancer treatment, your loved one may find life at home becomes increasingly challenging. If  your loved one is experiencing mobility issues, peripheral neuropathy, pain or weakness after treatment, the following changes to the home may make life easier and safer for your loved one:

Fertility

“Fertility” describes the ability to conceive a biological child. Human reproduction requires three elements: mature sperm, mature eggs and a person with a uterus to carry the pregnancy and give birth. Some cancers and some cancer treatments affect fertility.

Follow-Up Care

Click here for information about follow-up care, including what to expect, long-term and late effects of treatment, survivorship clinics, and other resources such as The National Comprehensive Cancer Network (NCCN) treatment guidelines.

• Download or order The Leukemia & Lymphoma Society's free booklet, Chronic Myelomonocytic Leukemia (CMML) and Juvenile Myelomonocytic Leukemia (JMML) 

Treatment Outcomes

AML is a difficult disease to cure. Just a few decades ago, almost no adults with AML could be cured. But today, advances in understanding of the genetic features of the disease and the use of targeted therapies have resulted in improved remission and cure rates for AML patients.

For statistics, click here.

• Download or order The Leukemia & Lymphoma Society's free booklet, Acute Myeloid Leukemia in Adults.

Melva

I am a survivor of lymphoma (Hodgkin and Non-Hodgkin). I was diagnosed with two kinds of cancer at the same time.

When the doctors finally found out what I had, I was already a stage 4. After more than a year of treatment and a stem cell transplant, I can say that I am cancer free. I don't say that too loud because I don't want to make something inside me come back. One doctor even told me that I was going to die. I did not give up!

Selina

My story starts when I was just eight months old. In March of 1994, it was discovered that I had a cheek tumor. Doctors removed the tumor, and I was treated with chemotherapy. I relapsed at two years old in 1995. I was diagnosed with acute myeloid leukemia (AML). Leukemic lesions had spread to my brain. I received intense chemotherapy and 14 days of cranial irradiation. I was very lucky that my little sister was born in June of 1995. Doctors had saved her umbilical cord (her stem cells). I underwent more chemotherapy and a stem cell transplant in October 1995.

Tasnim

What started as an internship opportunity turned into so much more for Tasnim Al-Smadi when she began working with LLS in the summer of 2021. Tasnim, who is pursuing her bachelor’s degree in Healthcare Management at the University of Texas at Dallas, was initially drawn to an internship at LLS because she is interested in working at a non-profit healthcare organization after graduation.

Johanna

I am a teacher from Texas. My journey to Team and Training wasn’t immediate. I moved to Texas from Louisiana. When I moved to Texas, I decided to start running to meet people and to help with my homesickness.

Kasey

In August of 2020, I noticed a baseball size lump on my neck. I instantly freaked out and went to my nearest urgent care center. There they told me it was most likely a cyst or inflammation of some sort. I was told to put a hot compress on it and take an inflammatory medication. It wasn’t until December of 2020 that I went to get it looked at again as it has not gone away. It never caused me pain or discomfort but with it not going away I was concerned.

Katie

Twenty years ago I did two things that shaped my life.

Kevin

My brest friend, Kevin McDowell has dreamed of going to the Olympics for triathlon since he was 13 years old. Shortly after winning bronze at the ITU Junior World Championships and three days after his first professional race in 2011, Kevin was diagnosed with Hodgkin’s lymphoma.

Fiorella

In September 2017, I was diagnosed with stage 2 Hodgkin lymphoma (HL), which is cancer that starts in the lymphatic system. My oncologist went over my treatment protocol, which included six months of chemotherapy treatments with one of the side effects of that regimen being hair loss. I was set to start chemo the morning after Christmas.