Search Results
Keyla
I was diagnosed with Hodgkin lymphoma (HL) three years ago at age 25. I started feeling pain in my neck when I drank alcohol, and then I started noticing my neck lymph nodes getting pretty big. After multiple blood tests, CT scans, and a biopsy of the neck, I was diagnosed with HL. I had to undergo 12 rounds of chemotherapy in total. I was so scared of all of the symptoms ― nausea and my hair falling out (but thankfully, my hair didn’t fully fall out, so I didn’t have to shave it, which was the least of my problems).
Chemotherapy and Drug Therapy
Chemotherapy is the mainstay of treatment for HL. A combination chemotherapy regimen consists of two or more chemotherapy drugs. Generally, the drugs are dissolved in fluid and usually administered via a peripheral intravenous (IV) line. If finding an accessible vein is problematic, a central line (a port, or a peripherally inserted central venous catheter (a PICC or PIC line) may be used for some HL patients.
Side Effects
Cancer treatment for Hodgkin lymphoma can produce side effects. The goal of treatment is to kill the cancer cells, but cancer treatments can damage healthy cells too which causes side effects.
Patients react to treatments in different ways. Some patients may have very mild side effects. For other patients, side effects can be more severe, sometimes requiring hospitalization. For most patients, treatment side effects are temporary and go away once therapy ends.
Clinical Trials
Taking part in a clinical trial may be a good treatment choice for people with chronic myelomonocytic leukemia (CMML). Clinical trials are under way to help improve treatment, extend survival and improve the quality of life for CMML patients. Today's standard treatments for cancer are based on earlier clinical trials. The Leukemia & Lymphoma Society continues to invest funds in CMML research.
Clinical Trials
Taking part in a clinical trial may be a treatment choice for some hairy cell leukemia patients. Clinical trials are under way to develop treatments that increase the remission rate of hairy cell leukemia or cure the disease. Today's standard treatments for cancer are based on earlier clinical trials. The Leukemia & Lymphoma Society continues to invest funds in hairy cell leukemia research.
Clinical Trials
Taking part in a clinical trial may be the best treatment choice for some myeloma patients. Clinical trials are under way to develop treatments that increase the remission rate of myeloma or cure the disease. Today's standard treatments for cancer are based on earlier clinical trials. The Leukemia & Lymphoma Society (LLS) continues to invest funds in myeloma research.
Team In Training Participant
I joined Team In Training (TNT) in 2012, when I decided I wanted to train and run my first half marathon. Some of my friends had told me about their success with the program, and while I didn't have a personal connection to The Leukemia & Lymphoma (LLS), it was obviously a worthy cause and I felt I could handle the fundraising aspect.
I loved the experience; the training cycle, the coaches, the teammates, and even the fundraising. And they got me across that first finish line.
Christal
My brother was diagnosed with acute lymphoblastic leukemia (ALL) in September 1996 and passed away in April 1997, his senior year of high school and less than a month after turning 18. As a young person watching my brother suffer through his cancer diagnosis and subsequent death, it took away pieces of me that I will never get back. Not only me but my parents, his friends, our church, and strangers alike. Throughout the years, I have felt exhausted in grief as I denied my feelings, only to be hit by it in full force in unexpected moments.
Kathie & Dave
Dave and I have been a part of The Leukemia & Lymphoma Society (LLS) since 1998. I can’t even remember how many Team In Training events we’ve done. We have both done at least one a year if not more since Michael, our son, was diagnosed.
This picture explains it all. Michael was 5 years old when he was diagnosed and of about 10 kids going through treatment with him at the time, I think only he and another are still here today. I know the statistics should be better but that’s the reality for us.
Keith
When the doctor calls you and says, "I need to speak to you as soon as possible," you know the news can't be good. I was diagnosed with a rare and aggressive form of leukemia, bastic plasmacytoid dendritic cell neoplasm (BPDCN). Most doctors have never even heard of it.
Callie
In January 2016, I was diagnosed with stage II Hodgkin lymphoma. I was four months pregnant at the time, and it was decided to carry to term because this type of blood cancer is a slower spreading cancer.
In May 2016, I had a healthy boy and 10 days later began my first of many chemo treatments. The following October I had my last treatment and I was excited to get back to "normal" life.
Luis
I used to donate blood at least three times a year. I did it as a way of helping others and never realized it would one day lead to me being diagnosed with myelodysplastic syndrome. But that’s exactly what happened in 2006, when a case of anemia kept me from donating blood that year.
Keana
Hello, my name is Keana. I am 26 years old, and I was born in Columbus Ohio. I was born with a rare heart condition called “hypertrophic cardiomyopathy.” It is a hereditary disease on my mother’s side. Many family members, including my mother, have passed away from the disease, and the other half received heart transplants, which is what led to me. I recently got my heart transplant in September 2021 and was admitted to the hospital for three months, one before and two after. After my heart transplant, I came in contact with COVID.
Tim
I was diagnosed with follicular non-Hodgkin lymphoma (NHL) in preparation for heart surgery. While my disease was stage 3, it was also slow-growing, and I went ahead and had open-heart surgery in January 2022 to repair a valve. Six months later, my disease had advanced, and I began four rounds of Rituxan® which did not work sufficiently. However, in that interim, I signed up for the Boston Marathon ― which goes by my house ― to run for Dana Farber where I am being treated.
Sherri
I have donated to The Leukemia & Lymphoma Society (LLS) for many years. This year I wanted to do more in honor and loving memory of my dad, Frederick.
Edmund
U.S. veterans’ sacrifices can occur on the battlefield … or much later.
Houseboys sprayed Agent Orange on weeds around the Quonset huts of Edmund Montefusco and his fellow soldiers in Korea in the early 70s, but it was decades before Edmund’s rare, slow-growing hairy cell leukemia made itself known.
Anthony
December of 2017 was a difficult time for me. It is the month that is usually filled with happiness, excitement and Christmas cheer. For me, it was the month I found out that I had Hodgkin lymphoma. It’s crazy when you think about it – we see all of these facts and figures about people who are diagnosed with cancer and we never, really, truly believe it could happen to us.
Zeena
As an oblivious 14-year-old, I never imagined that I would soon go through the most difficult journey of my life. While on summer vacation with my family, we quickly realized I was not my energetic, joyous self. My favorite activities seemed like energy-draining tasks, and my large appetite had suddenly disappeared. The once quick trip up the stairs turned into a painful trek up a mountain and a walk down the street to a treacherous marathon with no end.
Shelley
I went from being in the best shape of my life to battling cancer in only a few short months.
Three years ago, I made the choice to change my lifestyle, and I lost 100 lbs., which I can honestly say has saved my life. Prior to my cancer diagnosis, I was sharing my weight loss journey online to help others make positive choices. Little did I know that I was about to fight the biggest battle of my life!
Eliot
It was my senior year of high school, and I was thriving: MVP of the soccer team that went to the state finals; strong academics with an offer to study Natural Sciences at Durham University, one of England’s finest; fantastic friends who were to become even more important to me. My biggest challenge was getting a date for the prom! Things that were within my control were going really well. However, things outside of my control then flexed their powerful muscles, and that high school life ended and a new one began.
Seth
It was in my sophomore year at the University of Colorado Colorado Springs right around March 2021 when I first discovered the lump in my neck. I was simply doing homework at my desk, and my hand unconsciously brushed against my neck. I stopped and started to feel the unusual lump in my neck.
Soon after that, the tests started.
Mara
I was in my second to last year of nursing school and just over one year into my marriage when the headaches became too much to bear. I was 21. I was tired all of the time, but I was working in a busy ER and going to class when I wasn't at work. I had lost some weight, but I had been exercising more and getting a lot while working in the ER. I had a cough, but they tell you that you'll be sick a lot when you're in nursing school. Unfortunately, I happened to touch my neck one day while studying with classmates for a big exam. There was a lump there that I had never felt before.
Autologous Stem Cell Transplantation
In autologous stem cell transplantation, the procedure uses the patient’s own stem cells for the transplant. The stem cells are collected from the patient in advance and are frozen. After the patient undergoes high doses of chemotherapy, either with or without radiation therapy, the stem cells are then returned to the body. This type of transplant is often used to treat blood cancers such as Hodgkin lymphoma, non-Hodgkin lymphoma and myeloma.