Search Results
Sue
It’s 2015 and I am doing my happy dance! It’s been 20 years since my bone marrow transplant for my chronic myeloid leukemia (CML) and I am still here enjoying what life brings my way.
Pamela
In the fall of 2009, I rushed my wife, Pam Lewis, to the first of six emergency room visits. As with all of the visits, she was in such acute pain she could not answer the admitting questions coherently. She screamed in pain and scared several nurses in the process. My wife had always had a high threshold of pain, so her screams scared me also.
Barry
I was diagnosed with non-Hodgkin lymphoma in May of 2003. The diagnosis came after three or four months of tests attempting to diagnose a lump from my neck (which was ultimately removed). My wife and I were told that I had a disease that was considered treatable but not curable. My particular sub-type, follicular, has a tendency to reoccur. I was referred to MD Anderson Cancer Center in Houston. The staging test results showed I had a very small amount of the disease on the whole, but it was present in my bone marrow, which is considered Stage IV, or
Lenny
I am nominating an extraordinary person, that I have never met in person before. This person truly changed my life in many ways. He has performed many positive actions that changed my perspective and outlook of people for the better. He truly has the power to change millions of people's and or their family's lives, and my family and I were fortunate to be the recipients of access to his extensive knowledge base and his immediate comforting support.
Brooke
In September 2014, just shy of four months after college graduation, I was blindsided sitting in the emergency room at Duke Hospital.
Yaneiry
Certain things come into your life to show you how strong you are. Life is so fragile, and we don’t know if we will be here on this earth in the future. This process shows me that the most important thing in life is having health and making beautiful memories with loved ones.
Gianna
My story began nearly seven years ago on February 28 when I received the call from my doctor and heard those dreaded words, “You have cancer.” A week prior, I had gotten a lymph node biopsy for a lump that randomly grew on my neck. As a healthy 19-year-old, cancer was the furthest thing from my mind, and receiving a diagnosis of Hodgkin lymphoma (HL) was simply unbelievable to me and my family. Hearing this news began a three-week blur of diagnostic testing and meetings with oncologists, fertility specialists, and surgeons before my first chemotherapy treatment on March 23, 2015.
Madison
On April 23, 2020, at the age of 15, my whole world changed. I got the call that I was diagnosed with stage 2 Hodgkin lymphoma (HL) while getting ready for a birthday party. Throughout quarantine, I had to undergo four cycles of chemotherapy and 14 days of radiation consisting of countless days in and out of the hospital. I had allergic reactions to a few of my chemotherapies which caused me to stop breathing, and they happened at least once every cycle which was scary. My hair eventually started falling out in clumps, and the day I had to cut it off was probably when I cried the most.
Diagnosis
Having the correct diagnosis is important for getting the right treatment. Hodgkin lymphoma (HL) may be difficult to diagnosis. You may want to get a second medical opinion by an experienced hematopathologist before you begin treatment. A hematopathologist is a specialist who studies blood and bone marrow cells and other tissues to help diagnose diseases of the blood, bone marrow and lymph system.
Blastic Plasmacytoid Dendritic Cell Neoplasm
For personalized disease and treatment information, or to learn about clinical trials, contact one of The Leukemia & Lymphoma Society's (LLS's) Information Specialists at (800) 955-4572. BackgroundBlastic plasmacytoid dendritic cell neoplasm (BPDCN) was previously known as natural killer (NK) cell leukemia/lymphoma. As understanding of the biology and origin of this malignancy has improved, the World Health Organization (WHO) established the term blastic plasmacytoid dendritic cell neoplasm (BPDCN) in 2008.
Follow-Up Care
Follow-up medical care is important for every Hodgkin lymphoma patient. Follow-up care helps the doctor monitor you to see if disease has recurred or relapsed, or to see if more treatment is needed. Talk to your doctor about how often to have follow-up visits and what laboratory tests, scans, or other imaging you need. It is important to get a record of your cancer treatment including the drugs you received so that your doctor can follow up on specific long-term effects that may be associated with your treatment.
Bethaney
My name is Bethaney Jones and I am a Hodgkin's lymphoma survivor. I was diagnosed in April 2018 after a routine check up for a cough that lasted for months.
After my diagnosis, I was unable to complete the school year with my awesome third graders. I endured six months of chemotherapy and I was able to ring the bell on October 12, one day after my 28th birthday.
Olivia
Olivia was diagnosed with Stage 4 Burkitts lymphoma shortly after her 4th Birthday and after her baby sister was born.
It began when she was too weak to walk and misdiagnosed by a couple doctors. It wasn't until she ended up in the emergency room and ICU where they found the cancer.
She started emergency chemo right away and endured nearly eight months in the hospital . She was a fighter all the way.
Ainsley
On July 15, 2019, I was diagnosed with stage 2 Hodgkin lymphoma (HL). Before this, I was a healthy teenage girl going into my sophomore year of high school and playing volleyball. I started chemo and did four aggressive rounds. I finished chemo on October 3, 2019. Soon after, I was back at school. I started playing volleyball again in my junior year. Being diagnosed helped me realize what I want to do with my life. I’m now going into my freshman year of college to study nursing to become a pediatric oncology nurse.
Tina
My son Evan was diagnosed with acute lymphoblastic leukemia (ALL) when he was two years and seven months old. He went into remission a month later. He finished his chemotherapy and treatment, but shortly after he relapsed. He went through radiation and chemotherapy again and was given a bone marrow transplant. He never made it out of the hospital and passed away when he was four and a half. The reason I fundraise for The Leukemia & Lymphoma Society (LLS) is so other parents won’t have to go through what we went through.
Joshua
My name is Joshua. I was born and raised in South Florida and moved to Oregon after high school 8 years ago. I can’t say that I had a difficult childhood growing up just difficult circumstances that were challenges to overcome. I am what most people would consider an introverted type of personality, and while I was raised in a home with very caring parents and sisters, I’ve just always found it difficult to fit in, especially once I got to high school. I’m tall, at almost 6 feet, and very smart, always in advanced placement classes.
Joey
Joey Renick is a three-time acute lymphoblastic leukemia (ALL) survivor. He was first diagnosed at the age of 3, then 18, and again at 22. Joey has received years of chemotherapy, radiation, and a bone marrow transplant. Since receiving his bone marrow transplant in June 2016, Joey has married his wife Caylee, completed nursing school, began and continues to work as a bone marrow transplant nurse, and will be a dad soon.
Monica
As a First Connection® volunteer with The Leukemia & Lymphoma Society (LLS) for almost two years, I have had the opportunity to connect with patients and survivors to share their stories and experiences while battling this deadly illness. Every day I come across so many touching and courageous stories that inspire me to do more and more to support this cause.
Julia
My daughter Julia is 13 years old and was diagnosed with Hodgkin lymphoma on October 19, 2020. She had intense itching episodes on her arms and legs along with swollen lymph nodes that her dermatologist misdiagnosed her for along time with different things. We wanted answers.
After many tests we had answers, she has stage 2 cancer. And her itch is a Hodgkin itch, a rare symptom. Julia just completed her second cycle of chemotherapy and her itch has subsided. We are just beginning her journey.
Wendell
Wendell Ison was diagnosed with chronic lymphocytic leukemia (CLL) on June 6, 2006. It was through his own battle that he decided to create the team known as "Wendell's Warriors" as a way to give back and make a difference in people's lives by raising money for the Leukemia Lymphoma Society (LLS).
Stephanie
I was diagnosed with stage 2 Hodgkin lymphoma (HL) in 2000 and had seven months of chemotherapy (ABVD) and 20 rounds of radiation. I have not had a reoccurrence of HL, but in 2014, I was diagnosed with chronic lymphocytic leukemia (CLL). I see my oncologist every four months to check my white blood count, and so far, I am still in a watch-and-wait situation. I work full-time in a high-level, stressful job, have two children, and thankfully, have the energy to do it all and have not had to resort to any treatment yet.
Elizabeth
I was diagnosed with lymphoma in October 2017 after three months of dithering doctors even though I live in New York City and had good health insurance. After three months of dithering and a diagnosis, I was told the next appointment at the treatment department was in two months. I had the good fortune to have heard about Dr. Morton Colemen because he had treated a friend's mother 15 years before. He became my doctor that day, and I revere him.