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older white man with glasses and blue striped shirt holding a baby with an older woman with dark hair and a floral blouse

Bruce

I was diagnosed with stage III mantle cell lymphoma (MCL) in October 2004 following a routine physical exam. I wasn’t feeling ill, but since I quit smoking many years ago, as a precaution, my primary care physician recommended having a computed tomography (CT) scan of my lungs to see if I had any residual damage.

Childhood and Adolescent Blood Cancer Facts and Statistics

Childhood and Adolescent Blood Cancers
  •  An estimated 54,868 children and adolescents younger than 20 years in the US are living with or in remission from leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS) or myeloproliferative neoplasms (MPNs).
  • Leukemia is the most common cancer diagnosed in children and adolescents younger than 20 years and accounts for 25.4 percent of all cancer cases in this age-group.
  • From 2016 to 2020, the most recent 5 years for which data are available, leukemia and lymphoma accounted for 38.4 percent of all cancer types in

Signs and Symptoms

The most common symptom of Hodgkin lymphoma is one or more enlarged (swollen) lymph nodes. The enlarged lymph node may be in the neck, upper chest, armpit, abdomen or groin. The swollen lymph node is usually painless.

Other signs and symptoms of Hodgkin lymphoma may include

rhonda

Rhonda

This is my second time participating in the Light The Night as a cancer survivor. I have had blood cancer twice.

In 2012 I was diagnosed with Non-Hodgkin Lymphoma. After being in remission for almost 7 years on December 17, 2018 I was diagnosed with Acute Myeloid Leukemia. I had a bone marrow transplant in March and I am in remission.

I must say I’m grateful that team NCA (National Christian Academy’s school cheerleaders) would do Light The Night in my honor.

Jamaal

Jamaal Simmons had non-Hodgkins lymphoma (NHL). He was such a brave person. He worked at Publix supermarket and he went to Clark Atlanta University. He was about to graduate from college when he passed away.

It is now 14 years since he's been gone. But I still donate and collect donations and I've been doing this for many years. I will keep on doing it to help fight this blood cancer.

- Jamaal's mom, Sharon Williams.

LLS volunteer

Sherri

I lost my dad to leukemia 20 years ago, fundraising all year in his honor for the year he knew about his diagnosis but didn’t tell anyone. We also lost his mom (grandma) to leukemia in 2002 and my mother-in-law in 2007 to leukemia. I proudly support The Leukemia & Lymphoma Society (LLS) and try to donate every year, but this year, I hope to donate a big chunk to help current patients and their families.

multiple myeloma (MM)

Suzanne

My mother was diagnosed with multiple myeloma (MM) in February 1987. She passed away in December 1997. I was diagnosed with MM in February 2017. My diagnosis was not only a surprise but daunting because I was my mother’s caregiver and experienced what she faced battling this disease.  I’m currently undergoing treatment with the bispecific drug Teclistamab with success. The Leukemia & Lymphoma Society (LLS) has provided me with educational and financial assistance, so I greatly appreciate this organization.  

Clinical Trials

Taking part in a clinical trial may be the best treatment choice for some Hodgkin lymphoma (HL) patients. Clinical trials are under way to develop treatments that increase the remission rate or cure the disease. Today's standard treatments for cancer are based on earlier clinical trials. The Leukemia & Lymphoma Society continues to invest funds in HL research.

Click here to read more about clinical trials.

Treatment Outcomes

Treatment results and outcomes vary among patients. Newer treatment therapies, better supportive care and studies of new drugs in clinical trials are all contributing to improved outcomes and quality of life for people diagnosed with blood cancers.

Mona

Mona

I was 13 years old when I was diagnosed with stage 4 Hodgkin lymphoma (HL). That was in 1997, and I can now proudly say I’ve been cancer-free for 21 years! But being a 21-year cancer survivor comes with a lifelong diagnosis and long-term effects. But no matter the fight, I’m thankful each day for the opportunity to say I’m a “survivor.” And I do my absolute best to thrive each day and continue the fight for those who have left us too soon.

Dr. Adams

Jerry M. Adams, Ph.D., leads an LLS Specialized Center of Research grant.

His team is investigating apoptosis, the nature process of cell death. When apoptosis goes wrong it can lead to proliferation of cancer cells. It cells fail to die when they are supposed to they can develop into leukemia, lymphoma or multiple myeloma, and become more resistant to treatment. To improve treatment, the team is studying new drugs, used either alone or in combination with other therapies, to flip on the cell death switch.

David lymphoma

David

I walked into urgent care with a cough, they took an X-ray and discovered a mass in my chest that was 18x14x13 cm. I was hospitalized that same day and then was officially diagnosed with stage 3 mediastinal B-cell lymphoma (PMBCL). This occurred in 2018 just days after my 23rd birthday and only seven months after I moved to New York City. 

I decided to run the NYC marathon this year with Team In Training (TNT) because 2023 marks five years of being cancer-free!  

Clinical Trials

Taking part in a clinical trial may be the best therapy for some non-Hodgkin lymphoma (NHL) patients. Clinical trials are under way to develop treatments that increase the remission rate of or cure the disease. Clinical trials are carefully designed and reviewed by expert clinicians and researchers to ensure safety and scientific accuracy. The Leukemia & Lymphoma Society continues to invest funds in NHL research.

Click here to read more about clinical trials.

YolandaBeaton

Yolanda

As many people were afraid to go to the doctor I was propelled to have a colonoscopy due to the death of Chadwick Bozeman. That decision changed my life. In December 2020, I was diagnosed with Stage 4 Mantle cell lymphoma (MCL) is a type of non-Hodgkin lymphoma at age 44. Here I was amid a pandemic, just celebrating Christmas and ringing in the New Year as a newly diagnosed cancer patient. Like many people diagnosed with cancer, my first thought was, “I’m going to die.” I thought I’d die before seeing my daughter grow up.

Deborah

Deborah

I am a 54-year-old mother of two, the owner of a small business, Park Hill Yoga and have been married for 22 years. Being diagnosed with Hodgkin lymphoma in December 2015 came as the biggest surprise of my life.

Corey

Corey

Rewind to 2012, I was 35 years old, married and father of three. I was IBEW electrical lineman for a utility company and climbed poles all day (as seen in this photo). I noticed I had a severe stomach pain on my right side and was extremely fatigued. I went to the doctor for a checkup and got the all ok. We contributed the stomach pain to my climbing belt and the fatigue to working extreme amounts of overtime and being on callouts 24/7.

Jeannine

Jeannine

I got started with The Leukemia and Lymphoma Society (LLS) when our good friend, Tim Mauro, ran for Man of the Year and my husband, Larry, was his “campaign manager.” Tim’s father-in law, Bob, was battling non Hodgkin lymphoma. Watching them battle with him and seeing everything they did to help was such an inspiration, and seeing how many people were bonded together, raising money to find a cure, was amazing.

lymphoma

Kyle

In April 2019, Kyle, a 17-year-old football star at Glenn Hills High School in Hephzibah, Georgia, noticed a large lump on his throat while taking a shower. After a trip to the hospital and several tests, he was diagnosed with Hodgkin lymphoma and began intense treatment right away.

stage IVB Hodgkin lymphoma (HL)

Olivia

I'm officially nine months in remission and just celebrated my first birthday (27!) since finishing chemotherapy treatment. In January 2022, I was diagnosed with stage IVB Hodgkin lymphoma (HL) after taking almost nine months to officially be diagnosed. Unfortunately, delayed diagnoses are often the frustrating truth for many adolescent and young adult cancer patients. However, during those nine months, I learned invaluable lessons on how to advocate for myself and persevere until I had answers.

Hodgkin lymphoma (HL)

AnnaKate

In my junior year of college, I felt so sick that I would sleep through online classes, throwing up every couple of days. I thought I was just stressed and not sleeping enough at night. However, a month later, a relentless cough took over. It was nonstop ― cough after cough and nap after nap.

Hodgkin lymphoma (HL)

Erica

I was diagnosed with Hodgkin lymphoma (HL) on April 14th, 2023, but had been suffering with symptoms for at least a year prior. I’m only 28, have no kids, and have been living on my own with my two dogs. At some point, my lymph nodes started swelling up, which is not out of the ordinary because they would swell up when I would get sick since I had been in high school, except they continued to get bigger and bigger. Cancer does not run in my family, so I was not concerned until I went to my regular doctor, and he asked me if Hodgkin lymphoma (HL) ran in my family.

Alec

Alec

I am a caregiver and girlfriend to Alec Bishop. A strong and courageous man that has been fighting primary mediastinal B-cell lymphoma for over a year and a half. He was diagnosed in August 2017 with a softball-sized tumor pressing on his superior Vena Cava. He went through 6 cycles of R-CHOP chemotherapy only to relapse with a new tumor a month after his last cycle of chemo.

Relapsed and Refractory

Refractory non-Hodgkin lymphoma (NHL) is NHL that has not responded to initial treatment. Refractory disease may be disease that is getting worse or staying the same.

Relapsed non-Hodgkin lymphoma (NHL) is NHL that responded to treatment but then returns. 

Sarah

Sarah

My name is Sarah and I am a six-year Hodgkin’s lymphoma survivor. I’m extremely honored to not only be in attendance today but to also share my story. My world came crashing down July 2013. Like so many other patients, I had been diagnosed with frequent upper respiratory infections, asthma, bronchitis, pneumonia, and pleurisy prior to my diagnosis. I just so happened to discover a “swollen” area on my left collar bone one morning at work. It didn’t hurt, and it was kind of soft. It caught me off guard, so I made an appointment with my PCP.