Search Results
Stephen
Here's a truly inspiring story about a lymphoma patient and his treating physician who discovered in the midst of treatments last year that they shared a bond as former national champion ballroom dancers – and how the special connection affected his care.
Miguel
Miguel was diagnosed with Non-Hodgkin lymphoma in 2017. He was an active, healthy man all his life so this came as a total shock. We didn't know what to expect or what the outcome would be and we were both beyond devastated.
As being inquisitive is my nature, I gathered all the information I could and became extremely proactive in my husband's care and my determination to get him healed from this disease. Giving up was NOT an option for either of us.
Shar
For the past nine years as a physician assistant, I have had the privilege of taking care of acute leukemia, high-risk lymphoma and bone marrow transplant patients at the Intermountain Blood and Marrow Transplant Program. Throughout my years at this job, I have seen the struggles patients and their families face once they’ve been told “you have cancer.” I've enjoyed being an important part of our patients’ medical team, helping them heal physically and emotionally, but I wanted to do more.
Dane
I was diagnosed with stage 3 diffuse large B-cell lymphoma (DLBCL) in the summer before my senior year of high school in 2020. It was a tough adjustment dealing with the treatment and the aftereffects of treatment while going into my final year of high school. A relatively carefree life was upturned in an instant, and I was presented with new challenges of balancing my new condition with the social and educational challenges that the final year of high school posed.
Lo
I was diagnosed with stage 3 Hodgkin lymphoma (HL) in February 2022. I endured six months of chemotherapy and relied on my girlfriend to be my caregiver. I faced many setbacks including remaining neutropenic for the majority of my treatment. This meant staying home 24/7 despite going to the hospital and spending a lot of time online.
Anita
I was diagnosed with lymphoma in June, and on December 14, received the news I was in remission. I had primary mediastinal B-cell lymphoma (PMBL) to be exact. It is a very aggressive form of cancer, and within two weeks of being diagnosed, I had started chemotherapy. I started the regimen called DA-EPOCH-R. It is a 21-day cycle which consists of five days of treatment. I got continuous hours of chemo, and on the fifth day, I got two more infusions. I then had two weeks off.
Dianne
When I was a little girl, I knew I wanted to be a nurse so I could help people. I did become a registered nurse, predominately in critical care settings. So, when you receive a disease diagnosis, you treat the problem…right? Not necessarily I have learned.
I was recently diagnosed with non-Hodgkin lymphoma (NHL). I felt as if I was tumbling down a dark, hot hole. “Not curable, treatable, lifelong”. This is “watch and wait” protocol diagnosis…an overwhelming concept…”watch and worry”, I was told, was another concept.
Geoff
I'm a survivor of aggressive B-cell non-Hodgkin lymphoma. Seven cycles of R-CHOP reduced my tumor but did not kill it. I am fortunate to have been referred to the City of Hope for a stem cell transplant which took place a year ago April 8, which is also the day our first grandchild was born. So of the approximately 70,000 cases of non-Hodgkin lymphoma in 2013, I'm one of the roughly 50,000 to make it through treatment and into remission.
Jessica
Two years after surviving a massive heart attack, a heart transplant and a leg amputation at age 16, Jessica found a lump on her neck and was diagnosed with non-Hodgkin lymphoma (NHL). After months of treatment, her cancer was in remission.
Six years later, Jessica found another lump which out to be a different form of NHL. She told herself she'd been through cancer once before and there was no reason she couldn't beat it again. By January 2008, she was back in remission and finished treatment that following May.
Bruce
I was diagnosed with mantle cell lymphoma in August 2019 at age 64. It was an accidental find while scanning for a kidney stone. I was late stage 3 at diagnosis with no prior symptoms.
I had 4 rounds of R-DHAX finishing at the end of 2019 and followed with an autologous stem cell transplant at the University of Virginia on February 24, 2020. Along the way I had a life threatening duodenal ulcer (Oscar) as a result of the R-DHAX treatment.
Brice
I discovered a small painful lump under my armpit area so I went to the doctor and I was given antibiotics for an infected lymph node. A few months later, I noticed the lump had grown larger so I scheduled another doctor appointment.
My doctor ordered blood tests and an ultrasound which was followed up with a biopsy. I was diagnosed with anaplastic large cell lymphoma (ALCL) on October 24, 2016. ALCL is a rare type of non-Hodgkin's lymphoma.
Sofia
As a five-year survivor of Hodgkin lymphoma (HL), I have come to truly appreciate the value of life's opportunities and the importance of being fully present in every moment. My battle against cancer has shaped me into a determined and compassionate individual, instilling in me a deep sense of empathy for others facing similar challenges. I am grateful to have been awarded a scholarship for cancer survivors by The Leukemia & Lymphoma Society (LLS), recognizing both my journey and my aspirations.
Sherry
Last March, my husband Bruce went in for what was supposed to be a "simple" surgery. When the doctor opened him up, she found a mass the size of a honeydew melon (her description to me) wound around his intestines and colon. She essentially did cancer surgery on the spot and removed lymph nodes and the tumor.
Treatment
Treatment for Hodgkin lymphoma is changing due to new drugs and research findings from clinical trials. Therefore, before treatment begins, it is important to consider getting a second opinion at a center with a Hodgkin lymphoma expert.
It's important that your doctor is experienced in treating patients with Hodgkin lymphoma or works in consultation with a Hodgkin lymphoma specialist. This type of specialist is called a hematologist-oncologist.
Brandi
My concerns began to rise when I noticed some spotting/bleeding between cycles that would last for 10 minutes or less. Additionally, I also started to experience slight abdominal cramps first thing in the morning. I’ve always been a deep sleeper and rarely woke up in the middle of the night to use the restroom, so nothing seemed out of the ordinary. That escalated to me waking up multiple times in the middle of the night to try to use the restroom, sometimes without cramps and other times with extreme abdominal cramps.
Marie
In early 2017 we found out my husband Miguel had non-Hodgkin's lymphoma diffuse large B-cell. It was the most frightening and overwhelming time of our lives. To this day I am amazed at how we got through it.
Monica
Monica was learning how to be a new mom to a six-month-old baby when her night sweats got worse and worse. She also seemed to have a cough that would not go away. It turns out that her symptoms were not due to the daycare bugs her daughter brought home. In April 2017, she was diagnosed with non-Hodgkins lymphoma. Her clinical care team discovered a malignant 5 inch mass in her chest near her heart.
Logan
In October 2017 Logan began to have trouble with his throat and developed sleep apnea. He went to see an ENT who diagnosed him with an abscess on his tonsil and suggested a tonsillectomy. Logan went in for a routine tonsillectomy in November 2017 and was diagnosed with Burkitts lymphoma, an extremely aggressive type of non-Hodgkins lymphoma (NHL).
Larry
I was diagnosed with stage 3 diffuse large B-cell lymphoma (DLBCL), a type of non-Hodgkin lymphoma (NHL), back in June of 2012. I went through six rounds of R-CHOP and fortunately didn't have many side effects at all. I stayed positive and as active as can be ― and went into remission later that same year.
Richard
I received a nasty present for my 60th birthday. I was informed that I had stage 4 follicular lymphoma. Wow! Now what do I do? I was referred to a wonderful oncologist, Dr. Stephen Grabelsky, for treatment. Dr.
Jaimie Potvin
Finding cures for cancer is especially close to my heart. In 2011, my brother, Cory was diagnosed with large B-cell lymphoma. Our dad was already a two-time survivor of non-Hodgkin lymphoma, so we truly believed he would survive blood cancer too. When his treatment showed no signs of improvement, it was devastating. Cory died six years ago and I still miss him so much every single day.
Carolyn
In November 2014, my daughter Valerie was born. Shortly after, I was diagnosed with an upper respiratory infection by my doctor and received 3 rounds of antibiotics because it just wasn’t going away. Life was hectic as I learned to care for my newborn and I was getting into a new routine. Some of my lymph nodes became swollen. I was having night sweats. I developed a rash and high fevers.
Katie
I want to share my blood cancer journey. It all started back in October 2019 when I was at Gonzaga University. I started to experience the symptoms that I’m sure we’re all far too familiar with ― stomach pain, digestive problems, nausea, chest pain, and fatigue, all of which I was dealing with in addition to 20+ hours a week of tennis practice and a 15-credit class load.
Becky
In 2019, I was diagnosed with T-cell lymphoma (TCL). In 2021, I had a stem cell transplant. As of November 23, 2023, I am cancer-free.