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Welcome
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Welcome to the Leukemia & Lymphoma Society, Iowa Chapter Monthly Newsletter.
Please enjoy the latest updates and news from your Iowa LLS Staff:
Executive Director: Melanie Brown
Campaign Director, Man & Woman of the Year: Sharon Keeling
Business Development Manager, Team In Training: Jeannine Laughlin
Campaign Manager, Light The Night: Mary Ann Amundson
Campaign Manager, Student Series: Jorden Allen
Campaign Specialist, All Campaigns: Keena Roberts
Campaign Assistant, All Campaigns: Judy Kennedy
Bookkeeper: Holly Stevens
If you have questions regarding information in the Newsletter, please contact the Iowa Chapter office at 515.270.6169 or by email at keena.roberts@lls.org
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Local News
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Subaru Loves to Care Promise
(Pictured above:Dave Wright Subaru and LLS deliver blankets to families at the Helen Nassif Community Cancer Center in Cedar Rapids, IA.)
For the second year in a row, Subaru of America and The Leukemia & Lymphoma Society (LLS) will spread love, hope and warmth to cancer patients and their families in communities across the country.
In June, Subaru and LLS brought the Subaru Loves to Care initiative to life at 475 Subaru retailers across the country. Visitors to Subaru retailers were given the chance to share personalized messages of hope to patients in their local communities, or write an online message of support at www.lls.org/subaru. Those who wrote a message of hope at a Subaru retailer also received a bracelet to help spread awareness of LLS and the automaker’s goal to provide hope and care, one gesture at a time.
In July, Subaru retailers will deliver nearly 95,000 messages of hope to patients alongside 38,000 blankets to provide comfort and warmth as they continue their fight against cancer, while children battling the disease will receive arts and crafts kits.
The Iowa Chapter would like to Thank the following Subaru Retailers: Ramsey Subaru (Urbandale), Dave Wright Subaru (Hiawatha), C & S Car Company (Waterloo), Riley Subaru (Dubuque), Jensen Subaru (Sioux City) for their local partnership. In Iowa, we will deliver 400 blankets and 50 craft kits to local hospitals.
(Pictured above: The blanket and messages of hope being delivered)
THANK YOU SUBARU!
LLS Chipotle Day
(Pictured above: Some of the LLS Staff enjoying their Chipotle at the Valley West Mall)
On June 21, LLS partnered regionally with the Chipotle Mexican Grill raising $27,000 in Iowa, Missouri and Kansas. Chipotle donated 50% of the proceeds from each person that mentioned LLS in the store. The following 11 Chipotle's participated in Iowa: Dubuque, Waterloo, Cedar Rapids (2), Iowa City, Sioux City, Des Moines, West Des Moines (2), Ames and Ankeny.
Thank to all the stores and to all those that participated in Iowa!
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Meet Our 2017-18 Iowa Chapter Board
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Board Officers:
President - Michelle Henaman, Aetna
Vice President - Chad Stevens, City State Bank
Treasurer - Kim Babberl, Wellmark
Secretary - Brian Bahnsen, Wells Fargo
Board At Large:
Tami Becker, State of Iowa
Bryce Block, City State Bank
Mike Collins, Denman & Company, LLP
Spencer Cox, Morgan Stanley
BJ Knapp, Iowa Realty
Carrie Kruse, City of Des Moines
Jill Lambert, Homesteaders Life Co.
Daniel Lusche, University of Iowa
Matt Mausser, Speck USA
Kevin Moreland, Varsity Group Marketing
Jamie Morrow, ReMax Real Estate Group
Carrie Norris, Grand Homes & Renovations
Matt Pertzborn, Hy-Vee, Inc.
Jen Schulte, City of Des Moines
Tony Sly, Keller Williams
Ronnette Vondrak, Des Moines University
Dave Weber, Burke Corp.
Kathie Weber
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Mark Your Calendar
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July 8, 2017 -- LLS Night at Iowa Cubs, Principal Park -- Game Start 7:08 p.m.
August 1, 2017 -- Light The Night Kick-Off Party at Sam & Games, Des Moines -- 5:30 p.m.
Sept. 15, 2017 -- Parrot Head Golf Tournament at Legacy Golf Club, Norwalk --12 noon shotgun start
Oct. 14, 2017 -- Eastern Iowa Light The Night at Kinnick Stadium, Iowa City -- 5:30 p.m.
Oct. 21, 2017 -- Central Iowa Light The Night at Principal Park, Des Moines -- 5:30 p.m.
If you are hosting a third party event for LLS, and would like help promoting, please email details or a flyer to keena.roberts@lls.org.
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LLS National News Updates
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LLS Statement on Senate Healthcare Bill and Efforts Related to Cost of Cancer Care
LLS has serious concerns about the Senate’s healthcare bill unveiled Thursday, which would put cancer patients at risk of facing increased barriers to accessing life-saving treatments. LLS responded to this timely news by posting a statement from Dr. Lou on LLS.org, including this quote: “The Senate bill represents a step backward for cancer patients – making it harder for patients to afford the often-costly treatments they need to combat their cancer. LLS urges Senators to oppose this bill.” See our statement here. Further, the Office of Public Policy will be submitting a letter directly to the Senate next week detailing our concerns, and urging a bipartisan solution to address the significant obstacles to accessing affordable care.
These actions are part of our larger effort to advocate for patients and take a stand on issues related to the Cost of Cancer Care. The communications and policy teams have been collaborating on a series of activities related to this issue, including national media outreach to give voice to cancer patients. This outreach resulted in this recent placement in the Huffington Post, featuring a story of twins Kenedi and Kendal Breyfogle’s AML diagnosis, and their mom Abby Breyfogle’s #IAmAPreexistingCondition video, with a link to the LLS Advocacy Facebook Page.
American Society of Clinical Oncology Meeting
The American Society of Clinical Oncology (ASCO) meeting in Chicago (June 2 to June 6), brought together an unprecedented 38,000 researchers, clinicians, pharmaceutical companies and advocacy organizations, including representative from LLS, to share the latest data and advances in cancer research and treatment. Read two LLS blogs covering the highlights, which include:
Promising data from precision medicine clinical trials – drugs that treat patients based on genetics instead of where the tumor is in their body. In the study of a drug called larotrectinib, the patients treated had 17 different types of tumors and 76 percent showed response to treatment. Read more on The LLS Blog (1).
Innovations in CAR (chimeric antigen receptor) T-cell immunotherapy, which LLS has been funding for two decades. CAR T is an emerging approach that reprograms the patient’s own immune T cells to find and kill cancer cells. Two studies presented on CAR T showed promise for CLL (as a combination therapy) and myeloma patients. Read more on The LLS Blog (2). |
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