Search Results

Carol

Meet carol. hodgkin survivor. indiana. Carol was diagnosed with Hodgkin lymphoma in 2010. After being a stay-at-home mom, she went back to school to get her teaching degree and found out she had a grapefruit size tumor in her chest when she was one week away from finishing her student teaching. She put off finding a teaching job for a year while going through six months of chemotherapy. She was able to work as a learning specialist while going through her treatments as she had a very supportive principal.

Kate

"You have cancer" is one of the scariest things you might ever hear. When Kate was diagnosed with non-Hodgkin lymphoma (NHL), she initially thought about how she wasn't strong enough and how she wasn't ready to die. Then she calmed down and told herself she didn't really have a choice.

"You have to do this; you have to be strong."

Jane

In 2008, I retired from teaching art, mostly because I was feeling tired all the time and didn’t want the program I was running to suffer because I couldn’t keep up. I figured it was old age. I was enjoying my first full year of retirement when I woke up with a backache. After two months of tests, in July 2010, I was diagnosed with multiple myeloma, a treatable but not yet curable blood cancer in the plasma cells of the bone marrow. 

Zachary

Two months after we were married, my husband was diagnosed with acute myeloid leukemia (AML) in July 2021. I was 33 weeks pregnant with our first baby when he was admitted to St. Louis University Hospital for the next month of induction treatment. Prior to diagnosis, Zach had been experiencing fatigue and palpitations and would become winded just walking up our flight of stairs. We thought he was having residual effects from some prior illnesses that he was hospitalized for in April and May. We know now that those instances were the beginning of his immune system starting to fail.

Matthew

Our Matthew was first diagnosed with acute lymphoblastic leukemia (ALL) in August 2015 at the age of 12. He relapsed with ALL in December 2016 and underwent his first bone marrow transplant in February 2017 with marrow from an anonymous male donor from New Jersey.

In January 2019, he was diagnosed with mixed phenotype acute leukemia (MPAL). He underwent his second bone marrow transplant in February 2019 with marrow from his first donor's twin brother. Our two families have become very close since we were able to meet after the first transplant.

Nicole

I first became involved in Team In Training (TNT) and The Leukemia & Lymphoma Society (LLS) in March of 2020 because I was very interested in running the New York City Marathon. I knew that I wanted to run for a charity that meant something to me, so I knew I had to be a part of this team.

Mathura

David

My beloved husband, David served the community of Arlington, Texas, through the fire department for 38 years. Throughout his career, he served the city and trained and mentored other up-and-coming firefighters. He retired in 2017, and just nine months later, he was diagnosed with acute myeloid leukemia (AML), a very aggressive blood cancer. His oncologists believe it had simmered in David's marrow for a couple of years before it went acute. It came on with similar symptoms to the common flu. 

Madeline

I was diagnosed with acute myeloid leukemia (AML) in June of 2022. I was feeling fine and went for a routine physical where it was discovered that my white blood cell count was very low. This was the beginning of my nightmare. I was slotted to give my husband my kidney before I was diagnosed and had to quickly find another donor. We did and he got his transplant and is doing well. I was hospitalized for 8 weeks where I received very aggressive induction chemo that left me malnourished and on death’s doorstep.

Liz

I've been affiliated with The Leukemia & Lymphoma Society (LLS) for many years through the volunteer/fundraising opportunities available to my kids. Little did I know I'd be visiting your website for my own needs once my mom was diagnosed with acute myeloid leukemia (AML) in January 2023. I'm overwhelmed with the advances made by LLS and find your organization to be a tremendous resource filled with hope. I always click on your stories and decide I want to share mine because I feel like my story and that of my mom's offers just that, HOPE!

Jackson

Blood Cancer and Treatment Options

After your child is diagnosed with a blood cancer, you will work with members of the healthcare team to determine the best treatment plan. Treatment options vary depending on the patient's diagnosis, age, overall health, and other factors. Your child’s treatment plan might include

Treatment Outcomes

All patients are advised to discuss survival information with their hematologist-oncologists. Keep in mind that outcome data can only show how other people with CMML responded to treatment, and cannot predict how any one person will respond.

Unfortunately, lasting remissions are not common. The expected survival time ranges from a few months to a few years after the initiation of treatment, depending on a variety of risk factors including the percentage of blasts in the blood and marrow, the white blood cell count, and the presence of certain gene mutations.

Choosing a Blood Cancer Specialist or a Treatment Center

Taking an active role in making decisions regarding your treatment can have a positive effect on your health and quality of life. One of your first choices as an active participant in your care is to either select a specialist to manage your treatment or to choose a treatment center.

You may be seeking a blood cancer specialist or a treatment center because you:

Printable Question Guides

 To download or order copies of the Communicating With Your Healthcare Team series, click here.

Before you visit your doctor and other healthcare providers, it's a good idea to write down your questions or concerns. For a list of suggested questions to ask about certain topics, download and print any of the following guides:

Cancer Drug Therapy and Nutrition

Some drugs used to treat cancer can interact with food in ways that your treatment team will inform you about. When you begin a new treatment or start using a new drug, tell your doctor about any food allergies you have and ask:

When Your Child Has Cancer

Hearing that your child has cancer is terrifying for any parent. Today, most childhood cancer patients can expect to have full and productive lives. Many childhood cancer survivors return to school, attend college, enter the workforce, marry and become parents. Nevertheless, being vigilant about follow-up care, being aware of long-term and late effects of treatment, helping your child return to school and even dealing with your emotions are all things you’ll need to manage.  

Dan

When cancer hangs your cleats up for good

At my first appointment, the physical therapist asked me why. Why did I want to run a marathon? And I didn't have an answer, partly because when you meet someone, you don't want to blurt out all sorts of emotional baggage, and that's the sort of question that can trigger a lot of baggage.

Melinda

I am currently 30 years old and was diagnosed with non-Hodgkin lymphoma (PMBCL) when I was 27, almost 28 years old.

I was pregnant the day I was diagnosed, luckily 39 weeks, and ended up giving birth the same day I found out I had a massive tumor in my mediastinum. I was biopsied the next day and had to leave my 5-day-old baby and 2-year-old to go to the emergency room for a life-threatening emergency called svc syndrome.

Amanda

My name is Amanda, and I am a stage 4b classical multicellularity Hodgkin lymphoma (CHL) survivor. It all started after spring break of my junior year of high school. I was on a ski trip when I noticed my feet were more itchy than normal. I figured it was from the boots. After coming home and realizing it had gotten worse, we went to the pediatrician. She looked at the bruises and scratch marks on my legs and diagnosed me with scabies. I did the whole treatment for that, and obviously, it didn’t work. A week or two later. we went back and had some basic bloodwork done.

Halley

My story with cancer began long before I was diagnosed this year at 33. When I was 4 years old, my 18-month-old sister, Hannah, became too tired to play with me. As a child, I didn’t know what was going on, but something seemed wrong. My mom started taking her to doctor after doctor to find out what was happening. It wasn’t until we visited my grandmother in Florida that she had to go to the ER, and our family got the concerning news that she may have cancer.

Ron

This started 11 years ago when my mom was first diagnosed with lymphoma. I wanted to do more and saw the purple team always out running events I was entered into. I wanted to join and did in 2010. I have run in countless events over the years with Team In Training (TNT). Then my mom passed in May of 2017 while I was training for the Walt Disney World event. I was crushed and continued to run in her honor. My mom was supposed to be at the finish line at my 2018 Walt Disney World Marathon Weekend, and it did not happen.

Kaitlin

I moved to Chicago in May 2022. I had recently finished my joint PhD in Social Work and Psychology from the University of Michigan and was offered a job as a People Analytics Researcher at Google. I loved the city and enjoyed frequent runs and cycling rides along Lake Shore Drive. In mid-July, I started noticing some symptoms that concerned me ― difficulty breathing when I was exercising, intense chest and back pain, spider veins on my chest, puffiness in my face, and fatigue.

Carly

November 25, 2022 ― the worst day of my life, the day I received my official cancer diagnosis, stage IV Hodgkin lymphoma (HL).

Leading up to this day, I was always a healthy, active young lady. I was 23 years old and eager to start this next phase in life. Exciting things were happening. We were fairly new homeowners, I had just changed jobs/occupations, and I married the love of my life in October.

Heriberto

I was diagnosed with Burkitt lymphoma (BL) on Friday the 13th ― August 13, 2021, to be exact ― seven months after being married, three months after my wedding reception, and going on my honeymoon.